Within an hour after I made the decision to share my story regarding my decades long illness and my continued misdiagnosis, I started to hear from people. One woman wrote and told me she’d cried as she read it because my story was her story. She’d never heard of black mold as a culprit for her symptoms.
The notes and comments have continued to come faster than I can answer them all.
One question I want to answer right now is one I’ve been asked more than any other…
Who is this doctor?
His name is Dr. Joseph Brewer and he is based in Kansas City, Missouri. As I mentioned in my initial post, Dr. Brewer has published two papers about black mold and is working on a third. Google him. HE DOES NOT ACCEPT NEW PATIENTS.
I know that he speaks to doctors across this country and other countries about his findings because he mentioned it when we were there. So even if you can’t get to him in Missouri perhaps an open-minded doctor who isn’t stuck on the Fibromyalgia and CFS who is closer to you would be able to reach out to Dr. Brewer. I don’t know, but it’s sure worth a try.
Dr. Brewer is an incredible man and I believe his work is going to change the way we view Fibromyalgia and CFS in the United States and abroad. When he spoke to us, he told us how this became his passion and it was so powerful to listen to him and to watch him as he recounted his life’s work. He cares. So much. I must have been one patient of hundreds and yet I was treated as though I was his first and most important patient.
I feel good about sharing his name here because he told us of “creative” things some patients are doing to reach other sufferers. One patient is writing a book, he told us.
I will say in closing that my fear, if I have one, would be that the makers of the drugs prescribed to Fibromyalgia and CFS patients aren’t going to take this Black Mold diagnosis well. The drug that fights off the Black Mold factory is on the World Health Organization’s List of Essential Medicines, the most important medications needed in a basic health system. It’s cheap. My treatment (and my insurance won’t cover it) is only $70 a month.
I will be on this treatment at least a year. That’s $780. Less than a thousand bucks. How much does Lyrica cost without insurance?
If women will join together to stand up against the continued “diagnosis” of Fibro and CFS and take charge of our own health, we could be the generation that changes this nonsense. I can’t forget that “vapors” was our great-great-grandmothers’ Fibromyalgia and Chronic Fatigue Syndrome.
To your health and mine,